Online Ways to Help

Twitter Hash Tag is #invisibleillnesswk09

Posted on May 13, 2009. Filed under: Online Ways to Help | Tags: , , , , , |

Do you tweet? If you ae active on Twitter, there are lots of ways to let people know about Invisible Illness Week. One of the ways to help people find information about the eek on Twitter is to use what is called a “hash tag” (bear with me if this is new… it is to me too.)

So if you tweet, and tweet anything about Invisible Illness Week, include #invisibleillnesswk09 in your post and we will build the number of people who are able to locate information about it online. We like the fact that is spells out “Invisible Illness” but if you find it is cutting into your 140 character limit too often you can also use #iiwk09.
Here is a great explanation from Social Fishing:

A  hashtag (the pound sign # placed in front of a keyword) enables all tweets about that keyword to be found in Twitter search and creates a hyperlink within a single tweet to that search.

Why is that “required”? So you can find all the stuff people are talking about around that subject, regardless of whether you follow those people talking about it or not. For any time-specific event, a hashtag for that event allows you to round up all the tweets around it – which leads to lots of other cool things like being able to find all the other Twitter users who were part of that event (or just interested in it) and, then you can follow them. Newbie twitterers who try it out during a conference can immediately find a bunch of people to connect to. Advanced Tweeps can expand their network. Organizations can find out all the people who were participating in their conferences.

You might ask, well how do people know what the hashtag is for a particular conference? What if people use several? I would say it’s in the organizers’ interest to publicize early and often what the hashtag will be. Just pick one, make it as short as possible (easier for people to use and won’t cut too much into the 140 character limit), make it unique so there’s less chance of it being used with something unrelated, and tell people about it.

If this makes no sense to you you are not alone. Just ignore it. It’s okay!

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A Flyer About Invisible Illness Week to Send Others

Posted on September 6, 2008. Filed under: Online Ways to Help, Today’s News, Annoucements & More | Tags: , , |

Looking for something to send others about Invisible Illness Week?

You can click here for a fun sheet with all of the information. To send it go to the top of your IE browser and click “File>Send” and then choose “Page” or “Link to Page” depending on what you want to do. Most people who accept HTML email messages can see all the graphics. If you aren’t sure, or you don’t want to send a large file, just choose, “Link to Page.”

Thanks so much!

Lisa

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Public Service Announcements for Invisible Illness Awareness Week – Secular Stations

Posted on September 1, 2008. Filed under: Online Ways to Help, Today’s News, Annoucements & More | Tags: , , , , , |

If you have a favorite radio station, drop them an email or fax with our PSAs to see if they would be willing to air them in the next couple of weeks! There are 2 versions: 1 for Christian radio stations and 1 for secular stations.

==========================================
LETTER AND PSAS FOR REGULAR RADIO STATIONS
==========================================

LETTER TO SEND WITH THE PSAs – please edit to make it personal

Greetings,

·         Nearly 1 in 2 people in the USA have a chronic illness
·         96% of the illnesses are invisible

 

I am writing to see if your radio program would provide Public Service Awareness air time for National Invisible Chronic Illness Awareness Week. I am a volunteer involved becase ________.

 

There will be a “virtual conference” featuring twenty free online talk radio seminars to encourage and equip those who live with illness and people who are care about them.

 


Thank you so much for your consideration.

Respectfully,

 

  ==YOUR NAME==

 


National Invisible Chronic Illness Awareness Week

Invisibleillness.com and invisibleillnessblog.com
===============================================

NATIONAL INVISIBLE CHRONIC ILLNESS AWARENESS WEEK PSAs

===============================================

30 Seconds – 94 words – KILL DATE SEPT 14

Did you know that nearly 1 in 2 people live with a chronic illness and only about 4% of these people use a cane or wheelchair? Your best friend may have a chronic illness and you may not even know it. Most illnesses are invisible, which can be confusing and frustrating for everyone.

Invisible Illness Awareness Week is September 8-14, sponsored by Rest Ministries, which serves the chronically ill.

Join chronic illness authors and experts during some of the 20 free seminars on live internet talk radio. Care enough to be informed. Visit www.invisibleillness.com.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

20 Seconds – 63 words – KILL DATE SEPT 14

Did you know that nearly 1 in 2 people live with a chronic illness and 96% of illness is invisible? If it is not you, it’s someone you care about. September 8-14 is Invisible Illness Awareness Week, sponsored by Rest Ministries. Join chronic illness experts for twenty seminars through internet talk radio

Visit www.invisibleillness.com for more information. Care enough to be informed.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

15 Seconds 45 words – KILL DATE SEPT 14

Nearly 1 in 2 people live with a chronic illness and 96% of illness is invisible! September 8-14 is Invisible Illness Awareness Week, sponsored by Rest Ministries. Visit www.invisibleillness.com  for 20 free internet talk radio seminars with illness experts. Care enough to be informed.

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Public Service Announcements for Invisible Illness Awareness Week – Christians Stations

Posted on September 1, 2008. Filed under: Online Ways to Help, Today’s News, Annoucements & More | Tags: , , , , , , , , |

If you have a favorite radio station, drop them an email or fax with our PSAs to see if they would be willing to air them in the next couple of weeks! There are 2 versions: 1 for Christian radio stations and 1 for secular stations.

==========================================
LETTER AND PSAS FOR CHRISTIAN RADIO STATIONS
==========================================

LETTER TO SEND WITH THE PSAs – please edit to make it personal

 

 

Greetings,

·         Nearly 1 in 2 people in the USA have a chronic illness

·         96% of the illnesses are invisible

I am writing to see if your Christian radio station would provide Public Service Awareness air time for National Invisible Chronic Illness Awareness Week, which is sponsored annually by Rest Ministries the largest Christian organization that serves the chronically ill, and an affiliate of Joni and Friends International Disability Center (the ministry of Joni Eareckson Tada.)

We are hosting a “virtual conference” featuring twenty free online talk radio seminars to encourage and equip those who live with illness and people who are care about them.

Thank you so much for your consideration and help.

Respectfully,

 

==YOUR NAME==

===============================================

NATIONAL INVISIBLE CHRONIC ILLNESS AWARENESS WEEK PSAs

===============================================

30 Seconds – 93
words – KILL DATE SEPT 14

Did you know that nearly 1 in 2 people live with a chronic illness and only about 4% of these people use a cane or wheelchair? Your best friend may have a chronic illness and you may not even know it. Most illnesses are invisible, which can be confusing and frustrating for everyone.

Invisible Illness Awareness Week is September 8-14, sponsored by Rest Ministries, which serves the chronically ill.

 

Join Christian authors and experts during some of the 20 free seminars on live internet talk radio. Care enough to be informed. Visit http://www.invisibleillness.com.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

20 Seconds – 62 words – KILL DATE SEPT 14

Did you know that nearly 1 in 2 people live with a chronic illness and 96 % of illness is invisible? If it is not you, it’s someone you care about. September 8-14 is Invisible Illness Awareness Week, sponsored by Rest Ministries. Join Christian experts for twenty seminars through internet talk radio

 Visit www.invisibleillness.com for more information. Care enough to be informed.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

15 Seconds 45 words – KILL DATE SEPT 14

Nearly 1 in 2 people live with a chronic illness and 96 % of illness is invisible! September 8-14 is Invisible Illness Awareness Week, sponsored by Rest Ministries. Visit www.invisibleillness.com  for 20 free internet talk radio seminars with Christian experts. Care enough to be informed. 

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18 Ways to Spread the Word and Make a HUGE Difference for Invisible Illness Week

Posted on August 30, 2008. Filed under: Online Ways to Help, Today’s News, Annoucements & More | Tags: , , , , , , , |

It’s a 3-day weekend and some of you have written to me asking, “What can I do this weekend to help promote Invisible Illness Week?” Thank you! Here are some ideas to help us out by spreading the word. Pick and choose what comes easily to you… or maybe you’ve always wanted to figure out how to join Facebook or Digg? Now may just be the time!

Here are some ways you can help us inform others this weekend about II Week without even leaving your house!

  1. First, stop off here and rewrite some posts for your personal use. These are posts about Invisible Illness Week that you can copy and personalize.
  2. Post whereever you hang out. What social networks are you a part of? Facebook, My Space, Linked In, Ning.com, Yahoogroups, etc. Remember to make your posts personal and casual. This is a grassroots effort to help spread the word, not a sales pitch, so keep it friendly.
  3. What email newsletters have you received in the last month that are related to chronic illness issues? Go back through your deleted files and send off a personal note to the editor about Invisible Illness Week.
  4. Do you belong to any blog carnivals where they have the best posts of the week or the month? Be sure to email their editors and let them know about your post on invisble illness and send some information about the week.
  5. Write some “Digg” Reviews. On all our pages at www.invisibleillness.com on the left side, about half way down, you will see a “digg button.” Click it and write a review. This helps us gain a lot of exposure too!
  6. Join our Facebook group and email your other friends at Facebook
  7. Do you Twitter? Mention II week every few days for the next couple of weeks
  8. Here are another 6 ways we mentioned earlier this month
  9. Send out an email to everyone in your local support group. Encourage them to attend some of the 20 seminars.
  10. Email your friends and family and let them know about the week. Maybe write something personal about how you thought they may also know someone with an illness who would want to know about the free seminars. Who knows…? Maybe one of your healthy friends will check it out to better understand what you cope with!
  11. Do you have a web site? Reprint one (or more) of Lisa’s articles on your site/blog and start it off by writing something about Invisible Illness Week. Use one a day if you want! It’s guaranteed to bring some traffic to your site because they all will hit some Google alerts!
  12. Make sure to add the blogger badge to it!
  13. Do you like to write? Send something off to Associated Content (If you are a writer you should definately set up an account here!) If you want it to be more of a personal note, write it in an opionion Editorial style.
  14. Write a review of Beyond Casseroles. If you haven’t read it yet, you can read an excerpt from Google Books here. Your reviews help us rank higher in Amazon and thereby reach more people. We promote Beyond Casseroles: 505 Ways to Encourage a Chronically Ill Friend as a great tool during II Week.
  15. Don’t forget to email your pastor, clergy or other religious leader about II Week and why you
    think people he cares about would benefit.
  16. Let your doctors and counselors know. A quick way to do this is write a brief note, print
    off the schedule of seminars
    and fax it to their office. If you order brochures we can still ship them out priority mail (3 days).
  17. Call your local newspaper and explain that Sept 8-14, 2008 is National Invisible Chronic Illness Awareness Week. Pitch the idea that you will be participating in the 20 seminars/conference and that it’s an amazing opportunity for people with chronic illness, who can’t always travel or sit long, to be a part of this. Volunteer to share your story if they would like to do an article on your involvement (we have a few people who have already done this! Great job!)
  18. Write to “Dear Abby” at www.DearAbby.com (or P.O. Box 69440, Los Angeles, CA 90069). Check out our comments on two letters people just wrote to Dear Abby last week and her (less than perfect) responses… and our comments!

THANK YOU!!!

Lisa

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Easy Way to Get the Blogger Badge

Posted on August 23, 2008. Filed under: Online Ways to Help | Tags: , , , |

I found this handy dandy web site that actually has the code for any “badge” to help promote your blog. If you would like an easy way to stick our badge “I’m blogging for II Week” on your blog, just go here: http://wordofblog.net/info.php?id=7031 for code you can simply cut and paste.

Or for our logo click here to easily download it!


http://www.wordofblog.net/info.php?id=7036

It’s easy to use on MySpace, your web site, your blog, whatever! Thanks for helping us spread the word!

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We’ve Joined Facebook!

Posted on August 21, 2008. Filed under: Online Ways to Help | Tags: , , , , , , , |

Okay, so frankly I am still figuring out exactly all that Facebook offers, but some of you are way ahead and me, so maybe you can help us along.

We are listed as a “cause” and of course, our cause is National Invisible Chronic Illness Awareness Week (I know… you’re shocked, huh?)

So head on over and sign up for the II Week Facebook “cause.”

Together, we can make a difference (and I really mean together… because I need your help! Anyone a Facebook expert who would like to help me out here?)

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6 Ways to Make a Difference for Invisible Illness Week

Posted on August 20, 2008. Filed under: Online Ways to Help | Tags: , , , , , |

Here are some fast ways that you can make a difference today!

 

  1. Change your signature file for the next month in your email program 
  2. Post well-written press releases [here is an example] about your story on some of the free press release web sites and send them to your local paper too! Some freebie sites include: Express Press Release; PR Log; EWorld Wire; PR Insider; or for $10 Press Release 1-888 is a good one
  3. Contact the communities you’re involved in online about invisible illness week
  4. Pass out brochures at your local doctors office waiting room, therapy office, support group, pool, church, everywhere!
  5. Put up your “I’m blogging for invisible this week” badge on your web site
  6. Set up a resource table with your brochures, bracelets, etc. at your local support group meeting, church ministry fair etc.
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Email Your Pastor or Clergy About II Week

Posted on August 17, 2008. Filed under: Online Ways to Help | Tags: , , , , , , , |

Here is a template of an email for your pastor that you can cut and paste and personalize about why you think II Week is important and how the church should get involved.

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Do You Have a MySpace Site?

Posted on August 11, 2008. Filed under: Online Ways to Help |

Did you know that Invisible Illness Week has a MySpace site at www.myspace.com/invisibleillnessweek? Drop by and become “one of our friends.”

We know MySpace can seem a bit silly to you if you are not a teenager, but last year about 8,000 people came from our MySpace site over to the Invisible Illness Week web site!

 Join us today!

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