Guest Blogger Articles
Book Review–Everything Changes: The Insider’s Guide to Cancer In Your 20’s and 30’s
This is a blog post by Laurie Edwards, my friend and author of Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties . I asked her if I could reprint it here since is related so much to the article I just wrote about “You’re too Young to be that That Sick!”
Book Review
Everything [...]
GUEST BLOGGER: “My Secret is safe with ME”
“My Secret is safe with ME” – What I Wish People Knew About MeIt has been said by many people that I am a very good actress. “But You Don’t Look Sick” seemed to be all I heard. Is this a good thing? Sometimes it is an appropriate thing to say after a speaking engagement, [...]
Read Full Post | Make a Comment ( 4 so far )GUEST BLOGGER: Coping with Unexplainable Fatigue
Something that a lot of us chronically ill people have in common is that we have limited energy. A lot of us can only do a small fraction of the thing that “normal people” do. Personally, I only have a couple of good hours each day where I can get out and meet with people, [...]
Read Full Post | Make a Comment ( 7 so far )GUEST BLOGGER: The Daily Challenges of Coping with Invisible Illness
Living with an invisible illness comes with a lot of obstacles. The hardest obstacle was accepting that I had to live with this illness day after day. It took me a long time to accept it. I went through long periods of deep depression. I had questioned the purpose of my existence. I have yet [...]
GUEST BLOGGER: Being a Good Friend Even When We Don’t Feel Well
Last night I had the pleasure of listening to the talk given by Jo Franz during National Invisible Chronic Illness Awareness Week. Jo’s talk was entitled “How To Help Those Who Help Us”. Jo Franz has had Ms since 1977, so she knows of what she speaks. She has a wonderful website JoFranz which is [...]
Read Full Post | Make a Comment ( None so far )GUEST BLOGGER: That “Soil” of Illness is a Great Way to Explain It All
Hope can grow from the soil of illness.
What an appropriate theme for National Invisible Chronic Illness Awareness Week, and it has such a personal meaning to me. Let me share that meaning with you. I am a woman who has lead an extraordinary life, I am a Mother, a Grandmother, a photographer, a college professor, [...]
GUEST BLOGGER: Reaching Out To Others Even When We Need the Encouragement
Everyone I have ever met with chronic illness has a desperate need to be understood, believed, cared for and cared about. This is especially true when the illness is invisible to everyone else, except for those moments when some physical evidence shows up, like a rash.
Since it is not possible to show everyone the rashes, [...]
GUEST BLOGGER: Am I a hypochondriac?
I had a brush with my old friend hypochondria recently. But Mark Levine’s recent New York magazine article “Listening to Hypochondria” left me feeling secure that I’m not a hypochondriac, and hopeful for folks who really are. Allow me to explain:
Second nature
I grew up in a family of hypochondriacs. Without naming names, I’m comfortable saying [...]
GUEST BLOGGER – Invisible Illness: What’s in a Word?
I’m happy to participate in Invisible Week as a guest blogger and seminar presenter this year, and have been thinking a lot about the term “invisible” a lot lately. (What can I say? I am a semantics dork. But you already knew that.)After all, it’s the word “invisible” that sets this whole movement apart, that [...]
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