Are You Blogging for Invisible Illness Week Awareness?

I am confused as to the request. Are we to write a blog and link back to your site immediately? Or are we to write a blog, and have it publish on the 8th of September?

As soon as I have this figured out, I will follow the directions and post, link back, and promote!!

Thanks,
Christine
http://AfflictedWithRSD.com
http://blog.christineleiendecker.com

I’ve done another post named “Bernie Mac and Sarcoidosis”. I added a few sentences about Invisible Illness Week and I have the badge on my blog too.

Hi!! I am commenting to let you knwo i have my invisible illness week blog up on my site! Please check it out, im hoping for many MANY hits! Just go to my page and click on Blogging for invisible illness week!

Hi! I have a team blog of over 20 women writers. I know I have at least 3 that have invisible illnesses. Our blog is a bit different the way it is set up. I would like to use one of CAtegories like http://www.takerootandwrite.com/on_our_minds/index.html
And we each blog using the badge and write about the illness etc. I want to put the other badge on the site too for the week. The one with the yellow flowers and link back to the front page here. Let me know if you have thoughts! Blessings! Noelle

Hey guys,

I recently set up a social network called the Whyless Network to help people so gave your cause a plug here. I could always use new members too!

http://www.whylessnetwork.com/forum/topic/show?id=2268266%3ATopic%3A101

Good luck,
John.

I just started a blog today. The article is “The Family.” I am not sure how all of this works, but will give it a try.

http://iso-chronical.blogspot.com/

http://kitrona.blogspot.com/2008/08/invisible-illness-awareness.html My first entry, with more to come.

I love this site! Thank you so much for bringing awareness to invisible illnesses!!

I have a Migraine blog that I write, and have recently written a blog on my invisible illness! The site is http://fireinmybrain.blogspot.com – the direct link to the post is: http://fireinmybrain.blogspot.com/2008/08/seems-like-everyone-has-advice.html

Thanks for all your hard work!
Eileen

This is awesome! I’ll be doing my part by spreading the word through blogging at http://fibroandfabulous.blogspot.com. Thanks so much for doing this!

Kimberley

My blog title is…I’m Blogging for Invisible Illness Week

blog URL is…persevere-lori.blogspot.com

Thanks for starting this.

On September 8, I’ll post a blog titled “Invisible, but not inaudible” (cinderbridge.blogspot.com) The first part is pretty basic, explaining what an invisible illness is and why the invisibility is a problem. Then I’ll provide a link to a song I wrote about living with an undiagnosed invisible illness.

I just blogged about “My ‘Other’ Invisible Illness” (infertility) at http://harvestinghope.blogspot.com/2008/09/my-other-invisible-illness.html and I would love to have this considered as a Guest Blog if it works with your needs.

I’ll be blogging for the Artella group website – we have several members affected by invisible illness – including me – and I’d like to make them aware of the help and hope that is available online.

I think this blog idea for living with an invisible illness is a great idea! This should be very inspiring and motivating to anyone that reads it! Here is my post, please check it out!

http://www.thomas-slater.net/

You can find my own humble contribution here:

http://www.duncancross.net/?p=50

I’ll probably run a few more posts over the week, but that’s a start.

I blogged about General Awareness here: http://www.homeschoolblogger.com/dustbunniesandbooks/579694/

And I blogged about my early days with Dermatomyositis, Interstitial Lung Disease, and Raynaud’s here:
http://www.homeschoolblogger.com/dustbunniesandbooks/407888/

Blessings! –Celia )

My name is Marlene Gundlach and I have suffered from Fibromyalgia for 17 years. I maintain a blog tracking my battle to live a pain-free life and have authored a site on fibromyalgia. Come and visit and let me know when you stop by!

Hi!

I’ve done 2 posts so far: ‘Sunday, September 7, 2008 Endometriosis Blog: Tomorrow is DAY ONE of National Invisible Chronic Illness Awareness Week 2008!!’ *AND* ‘Monday, September 8, 2008 Endometriosis Blog: ***TODAY*** Kicks Off National Invisible Chronic Illness Awareness Week 2008!!’

My endometriosis & chronic illness blog is absolutely plastered with info on this week’s activities.

I dialed in this morning and talked with Lisa & Christine. I’m promoting awareness week on http://www.MyBlogLog.com, Facebook, etc. Keep up the great work!!

Jeanne
http://www.endendoat.blogspot.com

I just found your website. I have written my blog and it will post in the morning. Thanks for such a wonderful opportunity!

http://ldgermany.blogspot.com

I have a webpage for multiple awareness issues called “Care-Aware” (http://care-aware.spaces.live.com).

I just posted about Invisible Awareness Week; it’s entitled, “A Week of Visibility for People with Invisible Illnesses (Sept. 8-14, ’08).” You can view it here:

http://care-aware.spaces.live.com/blog/cns!DBE452D9D129BF48!183.entry

I included several graphics, some of your statistics… & links to your main site, your “50 Ways to Encourage a Chronically Ill Friend” tips, & your page where people can access the free seminars. I posted the YouTube version of your video; & I also included the blogging badge (with link), as well several comments about the importance of this awareness issue.

In addition, I posted about it on some private WebPages; & plan to do an emailing about it, as well (& add it into the personal signatures on my emails).

Blessings on your awareness week!

Some of these invisible illnesses are from stealth viruses which are chamelion-like and ride piggyback on our hormones and neurotransmitters, and which use our internal system pathways as transports. I am beginning to believe that this “looking good” is actually a DEVICE used by the invading aliens (that sounds like I’m making light of this, but I assure you, I’m dead serious), a camoflauge-type cell mechanism that they use to avoid detection — or treatments which might eradicate them, or eliminate them if they can’t be killed. Why there aren’t scans that can detect these energy vampires is beyond me; if the researchers knew how badly we were suffering, they surely would find this as quickly as they found a vaccine for bird flu (which nobody has, yet there are hundreds of thousands of us around the globe with invisible illnesses).

I put a post up today about II week on my blog. I also have a series of 3 other posts on invisible illness that I have posted over the last month that many may find helpful.

I’m so happy that this week has been created and I’m glad to be able to support it!

I’m a bit tardy on finding out about this, but I didn’t want to miss the opportunity entirely. I posted today after a follow up appointment with my neurologist, who was the first person to drive home how invisible my illness (rheumatoid arthritis) was to other people. I live in New York City, and it was something I really struggled with, and still do, in the face of so many strangers. The post is titled ‘The neurologist and the invisible diseease’ and it’s here: http://singlegalsguidetora.typepad.com. thanks for helping to bring awareness to what so many are going through.

I host a chat for the Delaware MS society, and this Friday we will discuss this Awareness week and the issues around living with an invisible illness. 7:00 – 9:30 pm EST. Visit shortinthecord.blogspot.com.

Hello all! I have been hanging out at CafeChronique and here is what I wrote to day
http://cafechronique.ning.com/profiles/blog/show?id=1911998%3ABlogPost%3A35710

Just posted at http://Beingchronicallyillisapill.blogspot.com

What an amazing turnout this is becoming! I, too was confused as to what day/date to post, as I don’t always get a daily chance to do so. But I did post my Invisible Illness blog today.

I mentioned it at my personal blog, http://thesurrenderedscribe.blogspot.com and gave a direct link to an article I wrote here: http://www.takerootandwrite.com/2008/09/invisible-illne.html

I hope better late than never counts?

http://claresauntie.typepad.com/fiftycenthead/2008/09/im-blogging-for.html

I’m so glad that I found this website, although the week is overwith, that is not the end of the invisible illnesses we all deal with. I can’t wait to get the word out more and tell people about this! It’s worth so much for others to understand what we go through and how life can be difficult for us. Thanks!

I have had a really had two weeks and thought the the light at the end would never come. But, God always promised that he would bring give us Son after the rain. I suffer from migraines that no one has been able to treat and rain/snow is my trigger. It has rained every day for days and I have been under a lot of stress as well since my husband has just had back surgery. I feels like I have an icepick stabbing me in my head and it wont give me any relief. So I cry out to God for mercy to stop the rain and the pain. But, I had to be patient and wait upon the Lord. He promised to send the Son in his time and my heart was at peace. Psalms 77:13-14 says “your ways, O God, are holy. What god is so great as our God? You are the God who performs miracles; you display your power among the peoples.” So, in our cloudy days, we can always look to the heavens and know that God is still the God of rainbows.

I am so excited about Invisible Illness Week. I have the invisible illness, Interstitial Cystitis (IC), a very painful disease of the bladder. I must be very careful about what I eat and drink, and I cannot move around too much without causing a flare of worsened pain. More than thousands of patients have IC and many don’t know that they have IC. The majority of patients see as many as 18 doctors before getting diagnosed and proper treatment. My life has changed, I have pain everyday, and my husband has left me. I still cling to hope through the grace of God and His goodness. I pray I can help others through my invisible chronic illness, Interstitial Cystitis.

Just found out about this awareness week, but went straight to the blog to write something up. Thanks!

http://eatinginfrontofthetv.blogspot.com/2009/09/awareness.html

I blogged about this topic and would like to be included in the blogger list. I tried to sign up at Bloggers Unite but haven’t received the confirmation email.